Many doctor visits later I was diagnosed with Rheumatoid Arthritis. It was a relief to finally have answers and make a game plan for how I would handle it. At first I took pills. But the arthritis progressed and a minute into a run I would walk home in tears. The tears not so much for the pain, but because I couldn't believe I couldn't make my body do what I wanted.
Remicade was a dream come true. An infusion that for many years made me whole. I was so pain free in fact that I decided to go off all my medication. My doctor agreed I was in remission and I left that day and never looked back
As much as a 'dream' as remicade was, it is also a fairly recent drug which means who knows what prolonged usage does.
After a little more than a year of being pain free the pain has slowly crept back. Mainly in my hands and feet. It didn't stop me, just made life a little more painful. Every step taken in a 6 mile run is felt. Every bottle I open is a struggle. But it's livable, I wasn't hurrying back to my doctor.
But last night changed everything. The pain in my left shoulder started about 3pm. I popped a vicodin and was able to attend a church function that night I had committed to. As soon as I got home the pain intensified. I popped another pill only to have it do nothing. I was crying and moaning and thrashing about so I took my broken self down to the guest room as I didn't want to keep Glenn up all night.
Truth be told it was just a nice gesture. I really thought I'd settle down and fall asleep.
No such luck.
Glenn left me another pill, a stronger one that I didn't think I would need but very soon was gulping down like a madwoman. It didn't help. It only made me nauseous and want to vomit.
The pain progressed to the point of childbirth pain, my shoulder was on fire. I didn't think arthritis had it in her, but apparently this is not a one trick disease. I tossed & turned all night mumbling, asking God to make it stop, shaking, playing soft music and moving into a million different positions. I was desperate for some sort of relief.
Eventually the paid did subside in 10 minutes increments and then I would gear up as I felt the pain come back stronger and harder for another 30 minutes to an hour. I am guessing I slept about an hour last night. How am I even functioning?
I am better today. I still can't put my hair up, my ponytail in the picture is compliments of Lila. It's still hard to dress. I can only move my left arm from the elbow down. I have new insurance now and haven't been approved for remicade yet. I pray I will.